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Showing posts from November, 2012

Helmet Head

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We went back to the craniofacial clinic to follow up on Wesley's head shape and fused sutures. They still think he doesn't need surgery and don't think we need to follow up with them again unless something changes dramatically. I'm more at peace with this now but I still worry that we're counting on his brain damage not getting miraculously better for him to not need surgery. But I'm trusting that there will be other signs that tell us if things are getting worse and although it is ideal to do surgery before 1 year, there'd are plenty of kids that have had it done much later and have done fine. So we aren't going to subject Wes to major surgery unless things change dramatically and we are positive that surgery is necessary. They did, however, recommend that we put Wes in a cranial band helmet to improve the shape of the back of his head. We're not sure if it will improve the ridge on his forehead or not, but it should help round out the back of his ...