A Different Boat

Amidst the struggles of seizures, there have been some really positive developments I'm excited to share with you all.   This fall Wes has started attending the preschool program at Anchor Center. We've been going to the infant and toddler programs since Wes was 10 weeks old but the preschool program is a big change. I now drop him off in his classroom with the 4 other students for 2 hours a day, 2 days a week. It's a step of independence for him and letting go of control for me. Until this point, I've been actively involved in all of his therapy and education, but now I leave him in class and trust that they will do what's best for him and will help him grow and develop. And you know what, he loves it. He is truly thriving in preschool. He is using his gait trainer (kinda like a walker) to move himself down a really long hallway between classrooms, he is socially engaging with his peers, he is eating a ton of purées during snack time, and he is aware of the rou...

As Wes gets older, my posts seem to be getting further and further apart. I guess that's a sign that this life feels relatively normal to us. I'm not struck by the need to share the latest updates because it all just feels like our regular life these days. I do want to give some updates though because I love that you all love and care for him and want to know what's new.   Bad news is Wesley is still having seizures. He's not having severe ones, as seizures go, but it is still heartbreaking to watch him disappear for a couple minutes. Sudden drops in barometric pressure seem to be a major trigger for him which does not bode well for Spring and Fall in Colorado. We live with the fear that he will start seizing and we will be unable to get him to stop. In the past year, we've watched as several of Wesley's classmates have been rushed to emergency rooms for severe seizures and attended the funeral for another classmate whose seizures were uncontrollable. We are ...