Seriously? More waiting...

Well once again todays appointment wasn't nearly as bad as I feared it to be. Unfortunately, it was entirely uninformative. The surgeons looked at him and asked more questions (which were already answered in his medical record). They commented that he doesn't "look" like a kid with craniosynostosis because his head is not buldging as it grows around fused sutures. I asked if that could be because his brain isn't growing rather than his sutures aren't acutually fused and they agreed that I might be right. The neurosurgeon said when he looked at the x-rays before the appointment he didn't see any fused sutures but then they read the radiologists report which said he has bicoronal suture fusion. So... they ordered a CT scan to see in more detail what is going on since they don't agree on what the x-ray shows or doesn't show.
I was so anxious for this appointment today. I was truly fighting off anxiety attacks the last two days because I was so afraid of what they would tell me today. Usually, the reprieve from worry comes in knowing that once the appointment happens, you'll know and can then move forward no matter how good or bad the situation is. Well now the anxiety can last for another night and morning while I wait for real information. They said someone will call tomorrow with the CT results. Hopefully then I'll get some answers and can breathe a sigh of relief or at least can plan our next steps. But until then, we are waiting... again.



Look how good he's holding his head up! (as long as he's looking left)

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