Happy Valentine's Day

 

Yesterday Wes went back to Children's to have his little trigger thumb operated on and a sedated hearing test done. He did wonderfully although he was quite a grump when he woke up. Colby and my parents both had to work but my friend Erin and her son Patrick came and hung out with me during the 2 hours of procedures (well until they got kicked out because it's flu season so no children are allowed as visitors). Wes now has a bandage on his hand for the next week or so and then we go back to the orthopedist to see how it looks. They said the hand surgery went very well.

The hearing test also went well. The original newborn hearing test they did showed a mild hearing loss in the lower ranges and a moderate hearing loss in the higher ranges. Yesterday's test showed NO hearing loss in the low ranges and identical moderate hearing loss in the high ranges. This explains some of Wes' auditory meltdowns to loud low noises as they were being over amplified by his hearing aids. So now his hearing aids are reprogrammed and he will hopefully have fewer meltdowns. The audiologist didn't have any explanation for his improvement (we were originally told his hearing loss was permanent). We'll take this as a little nod from God reminding us that he is in control.

I'm glad these tests are over as yesterday was a really anxiety filled day but everything turned out wonderfully in the end. Oh and Colby was finally home and not working so he got up with Wes this morning so I got to sleep in, yay.

Comments

Post a Comment

Popular posts from this blog

Life in an Abnormal World

Image
In my quest for books to support me in this journey I've ended up on, I found a book called Same Lake, Different Boat . It is written for Christians (particularly church leadership) to help them learn to minister to people with disabilities and their families. Although I am not necessarily the intended audience for this book, it has more profoundly impacted me than all the books I've read and I'm only on chapter 4 (I read the first chapter 3 times it was so good). I desperately want to plagiarize the first chapter here because I know I won't summarize it as well as she wrote it. Perhaps it won't be as profound of a revelation to you as it was to me (maybe it was just God speaking to me at that moment), but if it is, please buy the book (or read the first chapter on Amazon) to get the full impact. Since Wesley was born, I've had these horrible conflicting emotions about disability. On one hand seems to be the perspective that disabilities are all bad and someo...
Read more

A Different Boat

Image
I periodically get the bug to write a blog again.  As I thought about a couple different blog ideas, I meandered over and started reading old blogs I've written and came to two conclusions. 1) I have grown tremendously over the last 8 years.  Reading my own words about my hopes, fears, and experiences over Wesley's lifetime so far, I can recognize a ton of learning and maturing that has happened in that time.  I know a ton about systems I didn't know even existed 8 years ago.  But more than that, I have had to wrestle with so many big emotions and challenges that I'd been spared from for most of my life up to that point.  I cringe a little to read the naivety in some of my posts and I wonder how I will look back at the words I'm now writing in 10 years.  I guess I hope I will continue to grow so I will be able to see the immaturity I have now through more wise eyes.  And hopefully can read with grace and kindness towards the person I am today. ...
Read more

Wilder

Image
I feel like a competent writer when I am trying to express my philosophical or theological ideas or talking about abstract or societal concepts.  When it comes to telling my story, I find it much harder to express the depth of an experience.  It seems like everything I write down, although internally filled with enormous emotional weight, comes out cold and clinical.  Nevertheless, over the last several months I have slowly been processing through the traumatic memories of Wilder's first weeks to begin to write down our experience.  Years from now, when more of the details have faded I'm hopeful I will be glad to have this record.  So forgive the disjointed, clinical explanation writing as this was as much about processing for me as about sharing the story.   Almost a year ago, I was 36 weeks pregnant with my 4th child when my 7 year old suddenly spiked at 103 degree fever.  Next came a sore throat and then a rash all over his torso.  So of...
Read more