Maybe, Possibly, Probably?

I have so many overwhelming emotions related to our overnight hospital stay with Wes and I'm still not ready to unpack all of that. So, here are the facts.

The EEG was anything but definitive. It showed a lot of abnormal activity including lots of non-seizure spikes in electrical activity. This means they didn't catch any seizures on the EEG, but it is still very likely that either he is having, or soon will start having seizures. The neurologists recommended starting Wes on a seizure medication called Onfi which should prevent any seizures from happening and should help relax some of his abnormal muscle tone as well. Seizure meds are scary because they are designed to mess with brain chemistry even though our understanding of the brain is fairly primitive still. This medication, although highly addictive (which majorly scares me), is supposed to have fewer side effects than most. We're starting with a low dose given at bedtime,since the main side effect is drowsiness, and we'll reevaluate at the end of May. I'm really hesitant to medicate something we still haven't confirmed even exists but the risk of further brain damage from seizures is enough for me to willingly give it a try. So far, it seems to be ok. His muscle tone feels a little better and he hasn't been showing any obvious signs of the less common side effects. Now we just wait and see...

 

 

 

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