Nutrition
As we strive to help Wesley grow, I still find his feedings to be a huge source of stress. It seems to be a constant dance of steps forwards and backwards as he improves for short periods but then regresses. He has gained little to no weight over the past year. We've made intermittent progress in terms of tolerating textures and even some chewing of soft foods but as his willingness to eat has increased, his weight gain has stalled. Our best theory is eating is so much work for him, he burns a lot of calories in the process. So, we've switched his overnight feeds to higher caloric density and have tried to push as much as we can during the day without forcing him so much he is uncomfortable and stops eating again. But despite our best efforts, he's still hovering right at 28 lbs. So, our newest plan (now that medicaid will finally cover it) is to try a premade, nutritionally complete blend of foods in place of his formula. After 4 nights on Liquid Hope (the aptly named new blend) it's looking like it will be at least as good as his formula, if not better. When I compare the ingredient lists, I just feel good about this switch. We're going from 54% corn syrup solids to a combination of organic foods that you and I would feel healthy eating. Now here's to hoping we hit 30 lbs soon!!


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