Inside Wesley's Brain

Along with all the written reports about Wesley's imaging, we also got a DVD with all of the pictures.  Here is a view of his brain from his MRI on December 27th.  The black part on the right is blood inside his brain (from his stroke).  On the left you can see his eye (pretty crazy looking huh).  Besides seeing the obviously bleeding in his brain, the doctors were also concerned about a few smaller spots of bleeding and some other parts that just "didn't look right." 


The neurologist told us that as the blood gets reabsorbed into his brain material over the course of several months, the brain material either scars and dies or heals.  They don't typically repeat MRIs for stroke patients because an updated image doesn't change any treatment or give an accurate prediction of their future capability.    The visual/scientific part of me really wants a new MRI so I can what progress he has made.  I want to know how much of his brain died and how much healed.  Even though they don't normally do repeat MRIs, the neurologist said she might want to do another one for Wesley because of other abnormalities that they saw on the first one.  They are having a pediatric neuroradiologist at Children's Hospital review his MRI and then they will decide what to do next.  They are supposed to call me in about another week to let me know.  I'm really hoping for a repeat MRI and will try and push for one if they are still on the fence whether or not it is necessary (I'm gradually learning to advocate for what we want rather than blindly accepting everything they tell us).

Please pray that they will decide to do another MRI and that it will show a lot of healing in the brain and that the other abnormalities are no longer present.

Comments

  1. Praying for another MRI so you will have a better idea of what is happening AND for healing in his little brain. He is so precious!

    Hugs!
    Grandma

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  2. You know Wesley better than anyone else. Stand up for what you think he needs. You need to be his #1 advocate. Also, do not hesitate to refuse something if you feel it is not right for him. The Bilbe promises you that God will continually guide you. Claim that promise and make decisions with that in mind. I am continuing to pray for all of you. Karen Hankins

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  3. Nobody can fight for baby the way mommy can! Except Daddy...

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  4. You will always be Wesley's most important and passionate advocate. Do what your heart tells you to do.

    Margie

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